The report assesses the awareness and management of rare diseases in Asia-Pacific. It highlights the growing recognition of the need to address the challenges posed by rare diseases, which have become a significant collective challenge. The report notes that various new and revised health and social system measures in countries such as Australia, China, Japan, South Korea, and Taiwan reflect this growing recognition. However, the report also notes that significant challenges remain, including inconsistent care quality, limited knowledge and experience, and the need to make necessary knowledge available at the right time. The report concludes that raising the profile of rare diseases in Asia-Pacific is crucial to addressing these challenges.
